By Luke Voogt
A cure for cystic fibrosis (CF) would “mean the absolute world” for Belinda Narwar’s two youngest children Caden and Indie.
The Highton mother urged locals to attend an upcoming Geelong gala dinner, which has raised more than $100,000 for CF research over the past two years.
“We’re trying to do something to make it better for our kids rather than just sitting there and hoping,” she said.
Even the common cold could be dangerous for her two youngest children, who take 15 tablets and attend physio each day, Belinda said.
“We have to be careful attending parties and other social events,” she said.
Caden, 6, was only 24-hours-old when underwent his first major surgery for bowel complications resulting from CF.
He has had four operations since.
But Indie, 3, has coped better with the condition, thanks partly to her brother’s brave example.
“Indie gets to see Caden and see how he deals with it – she just copies what he does,” Belinda said.
“He says, ‘come here Indie you’ve got to stand here and let the doctor do this.’ It’s nice that they’ve got that bond and can help each other through difficult times.”
Seats are still available for the 2018 Cure Cystic Fibrosis Gala Dinner at Cunningham Pier on 19 May, to raise money for the Adelaide Cystic Fibrosis Gene Therapy Research Group.
The group could be ready to trial a potential cure in humans in a few years, according to organiser Leann Tremul, whose daughter also has CF.
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